Apa kata dokter tentang topical steroid withdrawal

ITSAN is here to help. Building bridges within the medical community.
Supporting individuals affected by Topical Steroid Withdrawal Syndrome.

Topical Steroid Withdrawal Syndrome Topical Steroid Withdrawal Syndrome is a painful medical condition that can develop as an adverse effect of topical steroid use. TSW Syndrome is growing in recognition, but much more research is needed.

There is hope if you have TSW Syndrome Topical Steroid Withdrawal Syndrome can be a long journey that is difficult to navigate. While ITSAN does not medically advise, we offer much needed information and support for the road ahead.

Topical Steroid Withdrawal Syndrome, also known as Topical Steroid Addiction and Red Skin Syndrome, is a debilitating condition that can arise from the use of topical steroid creams to treat a skin problem such as eczema.

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TSW Syndrome affects potentially millions of people around the world, of every age and background. View photos and stories from some of our brave TSW veterans.

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Whether you have been treated with topical steroids for eczema, psoriasis, or another skin condition, TSW Syndrome may be difficult to diagnose. Discuss these answers to common questions from peer-reviewed medical literature with your doctor.

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Dr. Heba Khaled (BDS BSc (Hons)) authored this atlas from a medical and patient perspective explaining how TSW develops, presents, and resolves. Dr. Khaled is a dentist from a medical family, but her understanding of TSW is personal – she is an ITSAN member who began her own withdrawal in 2017.

Here’s what to expect if you make the decision to withdraw from topical steroids.

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The urge to scratch can be powerful when going through Topical Steroid Withdrawal. What can be done about the intense itching?

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Recommendations, tips and tricks from TSW veterans to help you through Topical Steroid Withdrawal.

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Topical Steroid Withdrawal Syndrome can be overwhelming and isolating. Find community and encouragement by joining our ITSAN support group.

Your fellow ITSAN members share tips and comfort measures so you don’t have to go it alone.

We have many resources to help you navigate your steroid withdrawal journey.

“This organization helped me through the most challenging, darkest hours of my life. I don’t know how I would have made it through the healing process without the support of the founders and members, as well as the resources this network provides.” – Lorry, USA

“ITSAN is an encyclopedia of information on TSW and treatment options for eczema. My granddaughter was diagnosed with eczema when she was 3 days old and was prescribed topical steroids. It worked well in the beginning but after being prescribed steroids for over 3 years we were seeing many side effects from compromised immunity to stunted growth, anxiety issues to many more. Me and my family are thankful that ITSAN helped us with timely information and support to help my granddaughter’s TSW get better. She is now a healthy child living life with full enthusiasm” – Revathi Krishnan, Mumbai – India

“I felt alone battling my condition without the right support and information. If not for ITSAN I could not have survived my severe eczema which later turned into TSW. ITSAN’s support group provided valuable information in understanding my treatment options, connecting with survivors of TSW and helped me through the painful process of TSW.” – Vini Periera , Australia

Documentary by ITSAN member Briana Banos explaining the causes of TSW Syndrome, exploring treatment options, and exposing the lived experience of the TSW Syndrome sufferer.

The International Topical Steroid Awareness Network (ITSAN), was formed in 2012 to raise awareness about Topical Steroid Withdrawal Syndrome, also known as Topical Steroid Addiction or Red Skin Syndrome. ITSAN is a diverse community of individuals, medical professionals, and caregivers united by our commitment to prevent TSW Syndrome and to alleviate the suffering of anyone facing this painful experience.

We raise awareness by amplifying the TSW experience through:
– Social media: Facebook, Instagram, Twitter, and YouTube
– Representing ITSAN at National and International Conferences
– Collaboration with medical organizations and regulating bodies

Find strength and encouragement in our support group. There is more than one way to deal with TSW, and there is room for everyone at the table. The support group is also moderated by ITSAN board members to provide a safe space for everyone.

We provide information for affected individuals and health care providers: – ITSAN.org – The TSW information hub

– Webinar Series

– Newsletters: Subscribe here
– News, tips and the latest research

– Joined forces with AAN for Steroid Stewardship campaign
– Conducting surveys on TSW prevalence, steroid use, and side effects of cumulative steroid use
– Collaboration with the American Academy of Dermatology, CSD, IADPO, FDA, DCAN to bring regulatory and policy changes

“More than Skin Deep” Voice of the Patient Report

The International Topical Steroid Awareness Network, along with four other nonprofits, is excited to launch the “More than Skin Deep” Voice of the Patient report! This report includes the lived experience of eczema, drawn from data and testimony shared at the 1st patient-focused drug development (PFDD) meeting for eczema. Check out this report and learn from hundreds patient and caregiver experts who shared their perspectives at the meeting, on the webcast, and via the survey. Host organizations, including our own Kelly Barta and Kathryn Tullos, and sponsor companies share how they’ll use the learnings from the More Than Skin Deep initiative to better meet the community’s needs. Download the report at bit.ly/eczema-report.

“I have certainly seen Topical Steroid Withdrawal Syndrome, now multiple times. Generally, I find that these patients tend to have more widespread involvement on their body, but almost always have face and neck involved. Unlike eczema, it tends to be more red and flushing or blushing in appearance, although many patients will also have eczematous and scaly lesions at the same time.”

“Steroid addiction is a more subtle and more insidious type of side reaction. It is common but is not high in medical consciousness because it frequently goes unrecognized. Hence, it is underreported and not well characterized. Because it develops in stages, often slowly, both the physician and the patient may fail to incriminate the steroid.”

“Though the topic of topical steroid addiction (TSA) is troublesome for physicians, we should not postpone facing it. It is not a temporary tide, TSA is real. Please search articles in PubMed. At the minimum, warning of TSA as a side-effect of topical steroids must be added in the guidelines of all areas of atopic dermatitis treatment.”

“By being aware of TCS addiction and withdrawal, practitioners may be better able to help prevent this adverse effect and offer supportive care to patients in TCS withdrawal. It would also be useful for GPs to be able to discuss TCS addiction and withdrawal with patients who seek to clarify information they glean from non-medical sources.”